Hi everyone!!!
It has been a few weeks since I have been on my blog for numerous reasons but I am back:) My new year has been relatively quiet....loved it! I think as I get older I treasure peace and quiet:) Since the last time I had updated my blog, I have been to the ER twice...one for mild pneumonia and an infection which raised my heartrate...to this day my heartrate is still high....50 times more than my normal usual heartrate. Doctors do not know exactly what is going on. I am a little worried about it. My second visit was last week....my eyes decided to swell up at the same time. I had radiation to my right eye back in August of 2010 because a tumor had affected my vision. The Drs at Valley Medical told me that I would permanently lose my vision but by God's grace my vision is slowly returning to my right eye.
So the Drs at Stanford Hosp gave me an ointment for my eyes....Its doing much better except that I have another eye infection this morning.....LOL!!! Yes my life is very exciting!!:) So I have put some eye drops and hopefully it will clear up so I can go to the evening service. I need to- I will be down for the next couple of weeks.
One thing I am so happy about is that they stopped chemo on me and I am feeling much better. They had to stop chemo on me for several reasons and one of them was because my type of cancer was not responding to the chemo. It has grown twice as big so we are going for our second option of surgery to remove the tumor. I am scheduled for surgery in the coming week and of course I am a little nervous...my second time going under the knife but that does not make it any better. Leaving it all in God's hands...He will see me through.
Apart from that I have been getting more energy and rejoining everyone in the land of the living:) I am able to get up and clean my room....giving my hubby a break:) Before I could not even sit up on some days. All I wanted was my pillow and blanket and my heater....yes I would be freezing in the middle of the day..lol! Woke up this morning with no probs except for the swollen eye.
One thing you will need to do when going through cancer is that you need to pay attention to your body.....very important because your Drs will quiz you on every visit. No one who goes through cancer comes out the same way they went in. If you are fortunate enough you will not have any side effects from your treatment....maybe some battle scars...testifying to what you have been through. I salute fellow survivors.....it is not easy because it wears you down physically, emotionally and mentally. That is why whenever it gets hard for me I remind myself that someone out there is having it worse that I have. I am grateful and thankful that I have God on my side...if it wasn't for Him...I would not be here today...real talk!! Every cancer patient wishes for good health....its that simple....nothing else matters.
Things that you take for granted you will treasure....like your appetite:) Its so funny how when I go for chemo all I can see on each patient's screen is food channel:) One of the most common side effects is nausea and not being able to keep food down....thus the obsession with food. Cancer is something I would not even wish for my worst enemy. Cancer sucks!
I am looking forward to getting better and just getting back to normal life. I miss so many things like just being able to fellowship and socialize with family and friends.....my kids at my Sunday school class. So can't wait to get back!
Have a great Sunday!!
Sunday, January 16, 2011
Friday, December 31, 2010
Reflecting Back on how 2010 Was & Looking Forward to 2011
2010 started out promising and it is also ending with a great note. Looking back we cannot have gotten through without the love and grace of God. It would have been IMPOSSIBLE. We have a great support system and God had purposely put people in our lives and that has been a great blessing. We have a supportive family and a praying and caring church family, Pastor and Pastor's wife and Bishop and Sis Bobbie (Sis Bobbie love you!!! You are a blessing in my life) and just a great group of friends. I am grateful and thankful for that. Family and friends that has stood by us through thick and thin.
I would like to thank each and everyone of you who has made 2010 memorable for us. Forgive me if I missed you in my list...that will be my fault...my excuse "chemobrain" (keeping it light..lol!)
-Mom & Pa: Thank you for being there for us. We love you!!
-Momo B & Nei Lewa (my in-laws): Thank you being there for us...you are a blessing and the best:)
-Na Lia: Thanks for all you do....looking forward to 2011...hope you come back to church with me:)
-Tui: To my only sister....Thanks for being there for me. Thanks for getting things going at Stanford. I appreciate it greatly...now they call me the VIP patient at the ITA...hahahaha! and they spoil me too....lol!! I am not complaining about that:) You have always been the one asking my Drs questions....my other brain when mine is not functioning:) I love you my sissy...so my biggest wish for you is to come and know Jesus like we have experienced.
-Ju: My only brother. Thanks for being there little bro. You have grown a little mature:) and I am glad to see that God has His hand upon you. Without God you cannot accomplish anything. Always good to have Him on your side. We love you Ju!
-Tua Cama: thanks for being there though you drive me nuts sometimes:) We love you Tua!!!
-Tikolutus- Where do I start?? God has blessed us with your family- our second family:) Your family has taught us a lot about holding on- that this is only for a season...we thank you for your prayers and words of encouragement. We are so thankful and grateful for your family. Our prayer is that God will continue to bless you and your ministry.
-Drodrolagis- We are so thankful for your family. Our second family with a big heart and love for God:) Been there for us when we needed you and we are so grateful to have people like you in our lives. May God continue to bless you in the coming years.
-Our Pastor: Pastor J. Shoemake and Sis Tasha- Thank you for always lifting us up in prayer. We greatly appreciate all your prayers and words of encouragement. It has helped us get through the tough times. May God continue to bless your family! We love and appreaciate you!
-Our Bishop: Bishop Shoemake and Sis Bobbie: We appreciate that you are always praying for us. Sis Bobbie thanks for your words of encouragement and prayers. We love you!!
- My church family (my church:First Church of San Jose:))- Thank you for all your prayers, words of encouragement and support. We would not have the strength to be going through this without your prayers.
-Our Care Pastor: Bro S. Hassas & Sis Monica: Thank for your for your prayers and support and for always checking in on me:) Love you guys and may God continue to bless you in every aspect of your lives:) Go Mrs Darcy!!!
-Sis Vicky: I am so glad I have a friend like you:) I mean that- You know exactly what I am going through:) It makes it bearable when I have a friend going through the same thing as me:) I thank God for you:) You are one of the strongest women I know. You have taught me how to take it as it comes and to smile and bear it even though I feel like crying at a drop of a hat...LOL!!! To have a friend like you is a blessing!!! My friend.....like you said 2011 is our year!!! I am believing that with you. I am still believing for our miracle. Things are starting to turn around....God is faithful!! I love you my friend!!!
-To all our friends and extended family: There's too many to name....to all of you that has been praying for us and sending us notes of encouragement...thank you for doing that...you did not have to do that but you did and we are thankful that you did:) We can never have enough prayer:) We pray that God would bless each and everyone of you in the coming year.
-To everyone that has made 2010 memorable for us, please know that we love and appreciate you and we pray that God will bless you.
I am excited and looking forward to 2011. It is the year of possibilities, miracles and great things!!!
Have a Happy and Prosperous New Year Everyone!!! God Bless!!!
I would like to thank each and everyone of you who has made 2010 memorable for us. Forgive me if I missed you in my list...that will be my fault...my excuse "chemobrain" (keeping it light..lol!)
-Mom & Pa: Thank you for being there for us. We love you!!
-Momo B & Nei Lewa (my in-laws): Thank you being there for us...you are a blessing and the best:)
-Na Lia: Thanks for all you do....looking forward to 2011...hope you come back to church with me:)
-Tui: To my only sister....Thanks for being there for me. Thanks for getting things going at Stanford. I appreciate it greatly...now they call me the VIP patient at the ITA...hahahaha! and they spoil me too....lol!! I am not complaining about that:) You have always been the one asking my Drs questions....my other brain when mine is not functioning:) I love you my sissy...so my biggest wish for you is to come and know Jesus like we have experienced.
-Ju: My only brother. Thanks for being there little bro. You have grown a little mature:) and I am glad to see that God has His hand upon you. Without God you cannot accomplish anything. Always good to have Him on your side. We love you Ju!
-Tua Cama: thanks for being there though you drive me nuts sometimes:) We love you Tua!!!
-Tikolutus- Where do I start?? God has blessed us with your family- our second family:) Your family has taught us a lot about holding on- that this is only for a season...we thank you for your prayers and words of encouragement. We are so thankful and grateful for your family. Our prayer is that God will continue to bless you and your ministry.
-Drodrolagis- We are so thankful for your family. Our second family with a big heart and love for God:) Been there for us when we needed you and we are so grateful to have people like you in our lives. May God continue to bless you in the coming years.
-Our Pastor: Pastor J. Shoemake and Sis Tasha- Thank you for always lifting us up in prayer. We greatly appreciate all your prayers and words of encouragement. It has helped us get through the tough times. May God continue to bless your family! We love and appreaciate you!
-Our Bishop: Bishop Shoemake and Sis Bobbie: We appreciate that you are always praying for us. Sis Bobbie thanks for your words of encouragement and prayers. We love you!!
- My church family (my church:First Church of San Jose:))- Thank you for all your prayers, words of encouragement and support. We would not have the strength to be going through this without your prayers.
-Our Care Pastor: Bro S. Hassas & Sis Monica: Thank for your for your prayers and support and for always checking in on me:) Love you guys and may God continue to bless you in every aspect of your lives:) Go Mrs Darcy!!!
-Sis Vicky: I am so glad I have a friend like you:) I mean that- You know exactly what I am going through:) It makes it bearable when I have a friend going through the same thing as me:) I thank God for you:) You are one of the strongest women I know. You have taught me how to take it as it comes and to smile and bear it even though I feel like crying at a drop of a hat...LOL!!! To have a friend like you is a blessing!!! My friend.....like you said 2011 is our year!!! I am believing that with you. I am still believing for our miracle. Things are starting to turn around....God is faithful!! I love you my friend!!!
-To all our friends and extended family: There's too many to name....to all of you that has been praying for us and sending us notes of encouragement...thank you for doing that...you did not have to do that but you did and we are thankful that you did:) We can never have enough prayer:) We pray that God would bless each and everyone of you in the coming year.
-To everyone that has made 2010 memorable for us, please know that we love and appreciate you and we pray that God will bless you.
I am excited and looking forward to 2011. It is the year of possibilities, miracles and great things!!!
Have a Happy and Prosperous New Year Everyone!!! God Bless!!!
Monday, November 29, 2010
Good Morning:) I am Blessed!!!
Blessed with the preaching last night. Blessed to have a great Pastor. Isn't it amazing that the word of God is always the right one for your situation? GOD IS GOOD!!!
I am ready to start the week. I have an early start this morning. Not exactly looking forward to today's appointment. It has been a rollercoaster ride for me but I am trusting in God to see me through. They had ordered genetic testing on me about 3-4weeks ago to find out why I am having different cancers at a young age. Breast cancer and Spindle Cell Sarcoma are the two that we are dealing with.
My results came back the day before Thanksgiving and I tested positive for the Li-Fraumeni Syndrome. This means I am at a high risk of getting more cancers because of a mutation in a gene that we all have called the TP53. They have told me that there's nothing they can do because this gene is in every cell but let me tell you my God is still in control. Thank you Sis Vicky for always reminding me of this! You have and continue to be a great friend and listener through all this and I appreciate that very much.
So here I am...waiting for what treatment plan they have for me. God has seen us through so many things and this is just another bump on the road.
http://ghr.nlm.nih.gov/condition/li-fraumeni-syndrome
I am ready to start the week. I have an early start this morning. Not exactly looking forward to today's appointment. It has been a rollercoaster ride for me but I am trusting in God to see me through. They had ordered genetic testing on me about 3-4weeks ago to find out why I am having different cancers at a young age. Breast cancer and Spindle Cell Sarcoma are the two that we are dealing with.
My results came back the day before Thanksgiving and I tested positive for the Li-Fraumeni Syndrome. This means I am at a high risk of getting more cancers because of a mutation in a gene that we all have called the TP53. They have told me that there's nothing they can do because this gene is in every cell but let me tell you my God is still in control. Thank you Sis Vicky for always reminding me of this! You have and continue to be a great friend and listener through all this and I appreciate that very much.
So here I am...waiting for what treatment plan they have for me. God has seen us through so many things and this is just another bump on the road.
http://ghr.nlm.nih.gov/condition/li-fraumeni-syndrome
Friday, November 26, 2010
Friday
I had such a great two days of Thanksgiving. Spending time with my family. We should always be thankful for what we have- Thanksgiving is like a reminder for me. I am so thankful for what I have. I am thankful to God that He gives me life everyday. Sometimes its hard but the good times make it worth our while and the bad- well we need to learn from it- and if it does not kill us it makes us stronger:) Like my Pastor says...God will not let you go through it if you cannot handle it....I believe that.
My husband did most of the cooking this Thanksgiving- I am so proud of him:) He cooked the turkey, baked corn muffins, cut up the veggies for the side dishes and carved the ham and the turkey. I love you my husband and I am THANKFUL for you:) We have so much leftovers so this morning I got up with turkey on the brain:) Got up and had thanksgiving food for breakfast lol! Yup! The whole sha-bang!!! Skipped the pumpkin pie....but I will be back...:) Can you believe my prayer was answered- I tasted food:) so while it lasts I am going for my favorite foods:)
My husband did most of the cooking this Thanksgiving- I am so proud of him:) He cooked the turkey, baked corn muffins, cut up the veggies for the side dishes and carved the ham and the turkey. I love you my husband and I am THANKFUL for you:) We have so much leftovers so this morning I got up with turkey on the brain:) Got up and had thanksgiving food for breakfast lol! Yup! The whole sha-bang!!! Skipped the pumpkin pie....but I will be back...:) Can you believe my prayer was answered- I tasted food:) so while it lasts I am going for my favorite foods:)
Tuesday, November 23, 2010
Thanksgiving Cooking
My other favorite part of Thanksgiving is the eating part..lol:) I think I will try some new recipes this year because I am in charge of the side dishes.. maybe I should stick to the usual...thinking good old corn bread stuffing, green beans and the works, roasted sweet potatoes and veges, mashed potatoes... My aunt has dessert down....can't go wrong with pumpkin and pecan pie..I like mine with ice-cream need to pop a pill for this..lol! think lactose intolerant. Hubby has been going on about pumpkin cheesecake...we'll see...
I remember attempting my first Thanksgiving dinner years ago. The turkey looked so perfect on the outside but it was raw..it was a Disaster!!! My family had to wait longer to eat..lol...I have learnt my lesson. My mother-in-law on the other hand makes a mean Thanksgiving meal...I mean from scratch...and she makes these baked potatoes with veges...to die for!!! I still need that recipe:)
I love to cook and looking for recipes is like a new hobby now..lol..one of the nurses mentioned to me that she has met a lot of patients who are into cooking and just watching cooking shows when in the chair. I guess its because we can't eat most of it we just like to look at it :) How ironic:) I am hoping my tastebuds return to normal on Thanksgiving..lol! One can dream!! :)
Have a Great Thanksgiving Everyone!!!
I remember attempting my first Thanksgiving dinner years ago. The turkey looked so perfect on the outside but it was raw..it was a Disaster!!! My family had to wait longer to eat..lol...I have learnt my lesson. My mother-in-law on the other hand makes a mean Thanksgiving meal...I mean from scratch...and she makes these baked potatoes with veges...to die for!!! I still need that recipe:)
I love to cook and looking for recipes is like a new hobby now..lol..one of the nurses mentioned to me that she has met a lot of patients who are into cooking and just watching cooking shows when in the chair. I guess its because we can't eat most of it we just like to look at it :) How ironic:) I am hoping my tastebuds return to normal on Thanksgiving..lol! One can dream!! :)
Have a Great Thanksgiving Everyone!!!
Monday, November 22, 2010
Thanksgiving
Thanksgiving- what it means to me...I am thankful for a lot of things.I am thankful to Jesus for the gift of life. I am thankful for my family and my friends. I am thankful for my husband. Yes I am. God gave me the right one:) We have been through thick and thin- God is good! I am thankful for my Dad and my Mom- they are there for me when I need them, my in-laws..love them too- I am thankful for my sister- she has been so supportive and calms me down when I get in panic mode- my little brother for helping when I get too tired to do things on my own.
I am thankful for a good and supportive church family. Great pastor and pastor's wife, great care pastor and care pastor wife. Great friends:)
Sometimes it feels like we are stuck in one place but when we look back God has really brought us a long long way from where we started from. So I am thankful for that. I am thankful just to be alive. I am thankful for the people God has brought into my life at this time.
I am thankful for a good and supportive church family. Great pastor and pastor's wife, great care pastor and care pastor wife. Great friends:)
Sometimes it feels like we are stuck in one place but when we look back God has really brought us a long long way from where we started from. So I am thankful for that. I am thankful just to be alive. I am thankful for the people God has brought into my life at this time.
Sunday, November 21, 2010
Sunday
MOOD: OK Could be better
I am not feeling great today. My medications has got my system all messed up. Got my emotions all over the map, having hot flashes like you would not believe! Having a confused stomach and numb taste buds! I hate nausea! I hate being tired! I hate missing out on everyday things! Today is the day I am venting! So would you all excuse me while I vent!!! I am missing out doing family things and going to church and missing Sunday School- yes I really miss my kids in Sunday School- I love teaching Sunday School. I miss Sunday night services- so yes I am complaining up a storm today. Today I am sick of being sick!!! I had to miss church because my stomach could not settle down!!! It does get old.
Don't get me wrong-- I am grateful for the good things that I have in my life. All the blessings and all the support. I am human and sometimes it really gets hard to take. I do break down. Keeping a smile on can be a challenge. I know the road to recovery is much longer for me this time...so I gotta buckle in for the long ride..I am not going to give up- I am believing in my miracle. It's the getting there that can be a bit of a challenge. Staying positive is good but I am going to keep it real when I need to. Cancer sucks and I would not wish it on any living soul. It drains you out physically, emotionally and mentally.
Only Jesus can help me through this. Prayer helps- So when people tell me that they are praying for me- you have no idea how much that encourages me and lifts me up. So to all that prays for me I love and appreciate you and I am thankful that you are in my life at this time. Thanksgiving is coming up- I am thankful for all the great family, church family and friends for their love, support and prayers.
~Folau~
I am not feeling great today. My medications has got my system all messed up. Got my emotions all over the map, having hot flashes like you would not believe! Having a confused stomach and numb taste buds! I hate nausea! I hate being tired! I hate missing out on everyday things! Today is the day I am venting! So would you all excuse me while I vent!!! I am missing out doing family things and going to church and missing Sunday School- yes I really miss my kids in Sunday School- I love teaching Sunday School. I miss Sunday night services- so yes I am complaining up a storm today. Today I am sick of being sick!!! I had to miss church because my stomach could not settle down!!! It does get old.
Don't get me wrong-- I am grateful for the good things that I have in my life. All the blessings and all the support. I am human and sometimes it really gets hard to take. I do break down. Keeping a smile on can be a challenge. I know the road to recovery is much longer for me this time...so I gotta buckle in for the long ride..I am not going to give up- I am believing in my miracle. It's the getting there that can be a bit of a challenge. Staying positive is good but I am going to keep it real when I need to. Cancer sucks and I would not wish it on any living soul. It drains you out physically, emotionally and mentally.
Only Jesus can help me through this. Prayer helps- So when people tell me that they are praying for me- you have no idea how much that encourages me and lifts me up. So to all that prays for me I love and appreciate you and I am thankful that you are in my life at this time. Thanksgiving is coming up- I am thankful for all the great family, church family and friends for their love, support and prayers.
~Folau~
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